Showing posts with label pain and overreactions. Show all posts
Showing posts with label pain and overreactions. Show all posts

Sunday, August 2, 2015

With coping skills and techniques come some amazing moments!


    Life keeps moving forward, no matter how many times I reach out and try to find the pause button. Nixon's had 3 meet and play sessions with his ABA therapist. They're building a relationship that will expand to more demand-based play. For now they play games and sports during the sessions. Nixon gets frustrated but his therapist works with him and Nixon responds.
    One of their session days, our community was getting the weekly lawn care done. It wasn't safe for them to be playing in the yard while the yard guys were mowing, especially because there's always stuff in the grass getting tossed up by the mowers, so I suggested bubbles on our balcony for a bit. However, again lawn guys mowing, I offered Nixon his headphones to help cancel out some of the noise from the lawn mowers.
    This is what that looked like:

    Nixon also had to go to the dentist last week. That was...not fun. His dentist is amazing! She was wonderful with him, very patient and understanding of his autism diagnosis. I brought my ever-growing bag of tricks, which now also includes a weighted lap pillow, which in a former life was a pillow pet. (One night, a zipper, polybeads and my sewing kit made it all happen)

     The end result of the trip was a cleaning, some fluoride, and learning that all future treatments beyond cleanings will be done in a hospital setting under sedation. That is, Nixon will be sedated, not me, though after last week's visit I wouldn't be against a mild sedative for myself.
    Unfortunately, Nixon also had an abscess that had drained itself naturally, but his dentist wanted to treat him with a round of antibiotics to be safe. This is for a couple reason but largely because Nixon never mentioned any pain in his mouth at all, and having had an abscess once myself I'm amazed and shocked by that. He registers pain differently which makes treating some ailments harder, like an abscess. He was given amoxacillin in addition to a second, back-up only fill if needed, prescription. Why? Well, I have an allergy to both penicillin and amoxacillin, and my dad has an allergy to penicillin. Nixon's never been on either (never needed one before) and the doctor was understanding of my concerns.
    Yep, he had a reaction to the amoxacillin. It started with a stomach ache and the next dose he had a couple blisters form around his mouth, but it took him being on the medication for almost 3 days before the reactions started.
    Thank gods for that second prescription!

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     Mac was off this weekend and thanks to a good friend who adores Nixon, he and I had a date for the first time in months. And it was lovely!
     Today we had a family date. We went to the Brick Fair in Virginia, not a Lego sponsored event, but lots of Legos there! 
     Nixon was good, he had a few issues mostly waiting in lines or trying to see displays when people wouldn't move. He did get upset when we were asking him too many questions (we were trying to give him options for items to purchase for him, but it was too much for him). He always managed to stop himself before he got too upset. He'd refocus on something else and deescalate. And in the end, he decided when he was ready to go and asked if we could leave now. 
     We left. 
Trying to amuse him while waiting to get a clear spot to view the moving setups.

Trying so hard to keep it together while waiting to go into the bounce house

Nixon bolted from me when he saw this! 

Sliding a block down the ramp in the play area


Good night kisses for my boy, BeBe in hand and fingers in mouth.

     

Monday, February 2, 2015

It's Monday

   Nixon had an okay day. It was actually not bad until he got home.

   School was okay. Seven smiles. Twenty minutes out of class, lost 4 minutes of his 30 minutes of tablet time because it's February and we've upped it to one minute lost for every 5 minutes out of class. He's still struggling with his writing assignments, which means I'm making a phone call tomorrow to find out where the IEP implementation stands.
   He received an IEP progress report, they're required quarterly for all students with IEPs and have zero reflection of the IEP being in place.
    I don't know what's going on with him and lunchtime but he only ate a small amount of his lunch and he spent time out of the cafeteria during lunch.



   When we came home, Nixon was calmly and quietly sitting on the sofa when my cat darted into the room, tired jumping onto the back of the sofa and failed. She fell onto Nixon, scratching his side.
    Nixon has a strong reaction to immediate and unexpected pain. As soon as Arwen fell on him and he felt her feet on him he started shrieking. It took me over 5 minutes to get him to stop crying and to breath. Lots of sobbing and teeth chattering from him.
    This isn't uncommon and he spent most of the night getting equally as upset about the scratch. Especially at bath time. It took a while to get him totally calm but he went to bed and forgot about the scratch.

I'm not looking forward to removing that bandaid in the morning.....